Hi Pat,
I have been away from the site for a week or so, and had not read your post from the 28th. I wish I would have read it earlier, but now is better than never.
I full understand your feelings on this one. Letting go of the control over your life is hard, but believe me, you never had it. God never actually gave you the wheel of the car, you just thought he did. I learned this 25 years ago when I went through treatment for alcoholism. It took me years to learn how to stop trying to drive my life, but I did figure it out. I have learned to ask God for the ability to except and grow/learn from the life that Im living. He by the way is not driving either, life is an experience, and we are all part of that experience. The experience is that of living within the creation God made. We enter life (the experiencing of the creation) as individual souls. The life that opens before us is the experience we are having. It ebbs and flows, like a river. Some times we get stuck in one place like an eddy, other times our lives flow quite quickly. At no time does the water or God control the river, but events around it may cause change. If it rains upstream, the increased flow could change quite a bit of the structure of the river, but no one controls the outcome.
My life is like that. I can no more control my health or my reaction to events than I can control the sun from rising. In fact when I look back on the times I was in fact driving, I can see they coincide with some of the biggest mistakes Ive made in life.
What I try to do is not ask for a direction or outcome, but rather the strength to carry on with what I am faced with. If I had chosen not to except and grow, I would have taken my life long ago.
What you are living through is unimaginable and unthinkable for all of us. You can not control the disease, but you can learn to move forward with it. Yes you may lose interest in a lot of things, maybe everything. Thats ok; you are initialed to these feelings. The point is you wake up each day and do the best you can. If that is not up to your self imposed standard, oh well! Accept it, this is the best you can do. No one expects any more from you than that which you can give. Acceptance is hard for someone as active as you are. Ask for that strength, to except where you are. You may not feel your doing well, or that you are not being as important a piece of others life as before. But in fact that is not at all accurate. Sense your illness struck you, which you clearly were not controlling, you have become the beacon so many are drawn to. As Kelly wrote, you became an ancient tree, sprouted from a place only a few had seen. Now you have grown to become visible to all of us, world wide!
The fact is, you have not been controlling the direction of your life for a very long time, and during this time you have enriched hundreds of lives. In that vane, you would be grateful for the wonderful gift your life has become. What I have recently learned is its ok to be grateful and angry at the same time, over the same thing.
I grieve for my lost physical abilities, Im angry for my limitations, Im lonely in my pain, Im scared of the unknown and yet Im grateful for the things I have. Family, friends, God and the profound impact my life has had on so many people. Rejoice in the gifts you give every day, for you are the blessed one.
JD
P.S. Happy 4th
I have been away from the site for a week or so, and had not read your post from the 28th. I wish I would have read it earlier, but now is better than never.
I full understand your feelings on this one. Letting go of the control over your life is hard, but believe me, you never had it. God never actually gave you the wheel of the car, you just thought he did. I learned this 25 years ago when I went through treatment for alcoholism. It took me years to learn how to stop trying to drive my life, but I did figure it out. I have learned to ask God for the ability to except and grow/learn from the life that Im living. He by the way is not driving either, life is an experience, and we are all part of that experience. The experience is that of living within the creation God made. We enter life (the experiencing of the creation) as individual souls. The life that opens before us is the experience we are having. It ebbs and flows, like a river. Some times we get stuck in one place like an eddy, other times our lives flow quite quickly. At no time does the water or God control the river, but events around it may cause change. If it rains upstream, the increased flow could change quite a bit of the structure of the river, but no one controls the outcome.
My life is like that. I can no more control my health or my reaction to events than I can control the sun from rising. In fact when I look back on the times I was in fact driving, I can see they coincide with some of the biggest mistakes Ive made in life.
What I try to do is not ask for a direction or outcome, but rather the strength to carry on with what I am faced with. If I had chosen not to except and grow, I would have taken my life long ago.
What you are living through is unimaginable and unthinkable for all of us. You can not control the disease, but you can learn to move forward with it. Yes you may lose interest in a lot of things, maybe everything. Thats ok; you are initialed to these feelings. The point is you wake up each day and do the best you can. If that is not up to your self imposed standard, oh well! Accept it, this is the best you can do. No one expects any more from you than that which you can give. Acceptance is hard for someone as active as you are. Ask for that strength, to except where you are. You may not feel your doing well, or that you are not being as important a piece of others life as before. But in fact that is not at all accurate. Sense your illness struck you, which you clearly were not controlling, you have become the beacon so many are drawn to. As Kelly wrote, you became an ancient tree, sprouted from a place only a few had seen. Now you have grown to become visible to all of us, world wide!
The fact is, you have not been controlling the direction of your life for a very long time, and during this time you have enriched hundreds of lives. In that vane, you would be grateful for the wonderful gift your life has become. What I have recently learned is its ok to be grateful and angry at the same time, over the same thing.
I grieve for my lost physical abilities, Im angry for my limitations, Im lonely in my pain, Im scared of the unknown and yet Im grateful for the things I have. Family, friends, God and the profound impact my life has had on so many people. Rejoice in the gifts you give every day, for you are the blessed one.
JD
P.S. Happy 4th
