Faithful friends,
I just woke up from my best sleep time of the day. It's 10 pm and I laid down about 6 or so to nod off. With the sun setting as early as it does now I don't have a clue about what time of day it is when I awake except if the tv is still on. If there aren't infomercials running I know it's before 2 am. This is just one way I measure my day.
I saw the light was still on in the computer room so I came in here to check my mail and, of course, Audiogon. This is also where I find two of the three phones in the house. Barb will shut the ringer off on one phone and lower the ringer volume of the other two and put them in here. She's trying to protect me as best she can but this is also why I missed Albert's call this evening. I feel I can always nod off into another stupor easily enough but she feels that I need my rest. I can't stop her nor would I ask that of her. The poor woman is at a loss trying to help me in some way.
Nate has first hand experience talking with me with some narcotics in my system today. It's a struggle to speak and follow a conversation sometimes. I can only guess what it's like on the other end of the phone. LOL. Maybe this is payback Nate for springing every joke my way in a normal conversation. Now, it's your turn to follow what the hell I'm saying. Har har.
Bin, I'm with Albert in that you need to post more. Great stories that say a lot. I've received many other stories shared privately through email from other audiophooles too. I think these folks might be a little self conscious if they posted this stuff here for all to see. The prevailing veiw in the ol' USA is that certain things aren't manly. Hogwash. Being what we are in this thread together may be the most manly of things we can do. Having depth to our emotions and expressing them openly as we do here dispells the many urban legends of how simple and shallow men are. Of course I see strength in a broadsword and the arm that weilds it. I also see the depth of that strength in a tear shed, or a gentle, helping hand through softly spoken words of endearment. I'm proud to be part of this particular group of men.
Albert, when this thread begun I knew that if I started to post that I could not stop. That wouldn't be fair. All along I've only wanted you guys to take more away from this experience than it takes from you. I just didn't realize then how big a recipient I would be in turn. You understand the impact this is having on my wife and I can tell it's breaking your heart. This very thing is the hardest of all for me to deal with but I'm getting there. It just is. Nothing more, nothing less. I know you desparately want to do something to help me. You already have. We could talk audio since you've helped me numerous times without knowing it through these forums. We could talk about good times together. Phone calls. Tears. The only thing that matters at this time is what's in your heart and you've allowed me to look right into it. Keep calling.
We visited with the in home Hospice foks today. I have no need to begin this sooner than it's necessary. This nurse commented on how easy she thinks I'll be to work with. I wanted to tell her to give me her albums as a gesture of appreciation. Works for me.
Forgive me in advance for some of the stuff I may post later. I figure you need to know what this is like. At this time eating and drinking just about don't happen. I just don't have the room for anything to be in there. Good for me, I'm not hungry or thirsty beyond what I can consume. For the record, I had three or four crackers this morning and maybe a half glass of water total for the day. Later, it all came back up. Hell, this would be a big deal under more normal circumstances but for some reason the body deals with this during disease. I don't even think I'm dehydrated. Weird. I guess the body consumes itself.
Art, you've nailed it mostly. The things that are important in life are exactly what you list. The courage and grace thing is wrong though.
Gary, several local professionals are meeting to discuss the creation of a paliative care team here. I had encouraged my doctor to be a part of something like this and to my surprise it's already begun. Too late for me but I've got some inside help from afar if I need it.
Later guys.